Here it is almost Valentine's Day and we haven't updated since Christmas! Happy belated New Year! We were able to return home a week after the new year began. We have been getting Trevin's blood drawn weekly from his newly inserted port here at home and the nurse that had so much trouble drawing his blood before is excellent at accessing ports! It has been a blessing for Trevin.
So far, Trevin's hemoglobin has remained normal on its own. Because of the new medications, though, a mild form of his shingles returned. We were able to catch it quickly before it became full blown blisters and it is nearly gone already.
He and I just returned from a visit to Duke for a follow up and he has been given a clean bill of health. Before our little "set-back" he was down to just a couple of medications daily. Since, he is on nearly all medications prior to and some. He will still have to conitnue with these medications, but he is able to return to school for half days. We met with his principal, teacher and aid today. He is very excited to go back to school. We will follow up again at Duke in April with bi-weekly screenings from home. Our doctor here at home, Dr. Shaw, has been amazing! He has been instrumental in Trevin's and Brayden's recovery and we are so blessed to have such a wonderful doctor! Thank you, Dr. Shaw!
We were able to visit with our friend Rachel and her family while in Durham and so far she is doing well. She also had a minor "set-back" but is better already. We continue to pray for her recovery. Also, while we were there a little boy named Jaxsen had to be flown to Duke from Georgia for seizures. He and his brothe both had transplants and were in the same rooms as Brayden and Trevin in December of 2007. They have had many bumps in their road to recovery, but this one is the hardest, it seems. They are unsure why he is having seizures and we ask that our readers pray with earnest for his recovery! Pray for the doctors to diagnose the seizures and for God to heal his fragile little body. He is the same age as Trevin and his brother, Zach, is a year older than Brayden. Here is their website: http://www.caringbridge.org/visit/zachandjaxsen
We will update soon. Sorry for the lengthy time between updates. We have learned from reading others' websites that when a long time has gone between updates it usually means that things are good and returning to "normal." Thank you to everyone who follows our site and continually keeps the boys in their prayers. Please remember to pray for those we have mentioned and others we don't know.
Gina